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Coeliac Disease


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#1 comfortingsong

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Posted 30 October 2011 - 02:33 AM

Anyone here been diagnosed with Coeliac Disease or know someone well who has been diagnosed? How do/es you/this person live on a daily basis with this?

#2 greentiger

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Posted 30 October 2011 - 04:19 AM

A relative of mine was diagnosed shortly after her wedding. If you'd like i can get you in touch with her. I had them for shabbos twice (would have them more if they lived any closer) and the cooking took a tiny bit more thought than usual but wasn't complicated at all. Otherwise thats my only interaction with celiac.
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#3 TimeRebbe

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Posted 30 October 2011 - 07:33 AM

I have a few friends with coeliac, and one whose gone gluten free for similar reasons. Itws not that bad
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#4 starwolf

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Posted 30 October 2011 - 07:34 AM

You live on a daily basis with this disease just as you do with many other chronic diseases: by being continually ware of the problem, and changing your lifestyle accordingly.

It is difficult, especially for children, who often cannot understand why they cannot enjoy the things that their friends do.

However, there are more and more products available that ensure that people with the disease can live a normal lifestyle. Stores carry dozens of products for sufferers of the disease. Once people found out that there is a market, the number of products just exploded.

for example, there is a smartphone app that gives locations of restaurants with gluten-free menus near your location! Is that cool or what?

bottom line--it's not the best hand to be dealt, but it ain't aces and eights, either.

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#5 Sweet

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Posted 30 October 2011 - 07:47 AM

I can't resist pointing out, although this is not about celiac disease, that I can diagnose gluten sensitivity just by looking at a person's personality.
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#6 Savannah

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Posted 30 October 2011 - 10:01 AM

I can't resist pointing out, although this is not about celiac disease, that I can diagnose gluten sensitivity just by looking at a person's personality.

Do tell. :unsure:

My friend's kid has Celiac and she stockpiles Pesach cookies.

#7 Sweet

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Posted 30 October 2011 - 12:00 PM

Do tell. :unsure:

My friend's kid has Celiac and she stockpiles Pesach cookies.

I already said that I am not talking about celiac.
One good sign - if the person talks about the yummy quinoa recipe they just got from their yoga instructor, they might be sensitive to gluten.
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#8 Savannah

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Posted 30 October 2011 - 01:14 PM

I already said that I am not talking about celiac.

Yes, I know.

One good sign - if the person talks about the yummy quinoa recipe they just got from their yoga instructor, they might be sensitive to gluten.

Or they might be into fads. :unsure:

#9 justbatya

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Posted 30 October 2011 - 01:28 PM

Well, you get bonus sympathy points on Pesach by pointing out to people that you eat like this all year!

My poor SO still thinks that a Batya is a what, and not a who.


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#10 starwolf

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Posted 30 October 2011 - 02:23 PM

I can diagnose gluten sensitivity just by looking at a person's personality.


One good sign - if the person talks about the yummy quinoa recipe they just got from their yoga instructor, they might be sensitive to gluten.


Dude--that ain't looking at someone's personality, that's looking at their Birkenstocks.

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#11 Razie

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Posted 30 October 2011 - 02:48 PM

One good sign - if the person talks about the yummy quinoa recipe they just got from their yoga instructor, they might be sensitive to gluten.

Wow, you should drop out of law school now.
I would bet you that if there's any correlation between celiac and yoga/quinoa/etc it's insignificant.

#12 Sweet

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Posted 30 October 2011 - 09:06 PM

Yes, I know.


Or they might be into fads. :unsure:

Exactly. Which is why they are likely to be sensitive to gluten.

Wow, you should drop out of law school now.
I would bet you that if there's any correlation between celiac and yoga/quinoa/etc it's insignificant.

I'm thinking of dropping out for other reasons. Legal Research and Writing comes to mind. But I very specifically said that I was NOT referring to celiac, just to gluten sensitivity.
The world has too many stupid people who are full of confidence, and smart people who are full of self-doubt.

#13 Red Hare

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Posted 31 October 2011 - 09:38 AM

Isn't one sort of related to the other? Celiac and gluten sensitivitty, that is. Not Sweet and Razie.
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#14 peeptoad

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Posted 02 November 2011 - 02:05 PM

Isn't one sort of related to the other? Celiac and gluten sensitivitty, that is.


Yes. And there are some schools of thought that believe gluten sensitivity is celiac disease that hasn't progressed to the point where it shows up on the lab tests. The blood tests have about a 25% false-negative rate, incidentally.

Living with celiac/gluten sensitivity is pretty simple since there are gf alternatives for practically everything. The only thing I occasionally miss is a baguette.




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